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Join a research study

There are several online sites for finding research studies involving patients with GnRH deficiency (including those with Kallman syndrome):

  • COST participants conducting research studies on GnRH deficiency are listed to the LEFT.  You can contact the investigators directly from links listed for each country.

  • Orphanet is a reference portal for information on rare diseases and orphan drugs.  Click HERE to start seaching for studies listed on the Orphanet site.

  • is a web-based resource to help you find clinical research studies around the world.  This site is based in the United States but also lists studies from many other countries.